Research Information sheets
We produce a number of research information sheets for people living with MND, clinicians and health and social care professionals. All of our publications are checked for accuracy at the time of publishing and are reviewed annually.
All of our information sheets can be downloaded below, or ordered in a printed format from our helpline MND Connect. You can also send an order using our printable order form. To see our full range of resources and publications, please see the MND information resources page.
Research Information sheets
A: Introduction to MND research
Information on what happens in motor neurones, possible causes of MND, types of MND research we fund, and ways to find out more about current MND research.
B1: Inherited MND: Introduction
How can MND be inherited, the importance of taking family history, and what does having MND mean for a family.
B2: Inherited MND: Genetic testing and insurance
Genetic testing and how diagnosis of inherited MND can affect insurance.
B3: Inherited MND: Options when starting a family
Options available to family members affected by MND who may wish to start a family.
C: Unproven treatments in MND
Facts about unproven treatments and some issues to consider before undertaking such treatments.
D: Clinical trials
How and why clinical trials are conducted, and the process involved.
DA: MIROCALS clinical trial
Information about the MIROCALS clinical trial – what is Interleukin-2 treatment, who can take part and how the trial works.
E: Research we fund
Portfolio of the current research projects funded by the MND Association.
F: Stem cells and MND
What are stem cells, how they might be used to create new models of disease, and testing stem cells as a potential treatment.
What are biomarkers, how are they useful and are there any MND biomarkers?
H: Accessing unapproved drugs
The process behind drug approval after a clinical trial, and how a drug not currently licensed to treat MND can be accessed by a patient.
I: Tissue donation
How tissue donation may be useful for MND research, what is the process if you wish to donate your brain and spinal cord, and contact details for local tissue banks.
J: What happened to my UK MND Collections (DNA Bank) sample?
What happens to a DNA sample that was deposited as part of the MND Association’s DNA Bank.
What are statins, and can they affect the likelihood of developing MND and its progression?
L: Research involving animals
Information about finding MND research involving animals, and the reasons for and principles of such research.
We welcome your views on our Research Information sheets. If you have any suggestions on how we can improve information in our information sheets, or suggestions that you would like to share with us, please fill out our online survey.